Tag Archives: Fibro

Family Updates for those who care

It’s now early February, Patricia just came home to our house, although she could have used an other week or two in a rehab, no one was paying. Maybe it’s just our nervousness and she is ok. I don’t know, she has a halo on her head, a feeding tube hanging out of her stomach and a patch over one eye… Looks fine to me. Continue reading

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I need your support

To my Family and friends who already know about Patrick and Patricia, you can skip this post as there is nothing new in it, I only want to update others who don’t know. This is way off base from what … Continue reading

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The Festival of Lights Opens Up

Friday December 9th the Bridgewater Festival of Lights opened up and I was there to see the lights. It was a great night, on the warm side. The Bridgewater Academy Lions were there for the weekend serving free refreshments and … Continue reading

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In todays episode we find Bob sitting at his keyboard cursing the pain in his hands, How can I type with all this pain? I have already taken my morning 9 different meds plus my get out of bed 10 mg Oxycontin with 1/2 10/325mg percoset. Those 2 I take 20 minutes before trying to get out of bed. Hope we never have another fire :) Continue reading

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40 Things NOT to say to a Fibromyalgia-Chronic Fatigue Sufferer

Here are 40 things people shouldn’t say to a fibromyalgia or chronic fatigue patient:

With friends like you, who needs chronic pain? Continue reading

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FM CONFERENCE AND PAMPERS 2011 ANOTHER BIG HIT

The Fibromyalgia Conference and Pamper Weekend in April on the south coast was another great success inspite of cancellations by the Americans. Described as a ‘coalition’ conference many Group Leaders played a major part in collecting stage payments at group meetings over several months, to enable delegates to come to conference. Without the support of those Leaders, many living on benefits would have been unable to come. Others found their local Rotary Club willing to help fund their visit to the conference. Continue reading

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Men are also fibromyalgia patients

WASHINGTON, Aug. 21 (UPI) — The chronic pain syndrome fibromyalgia, which most often occurs in women, can also affect men — not only as patients, but as caregivers, U.S. researchers say.

“Although 10 percent to 20 percent of fibromyalgia patients are males, few scientific studies have been done in this population,” Lynne Matallana of the National Fibromyalgia Association says in a statement. Continue reading

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Mortality in fibromyalgia: An 8,186 Patient Study Over 35 Years

We studied 8,186 fibromyalgia patients seen between 1974 and 2009 in 3 settings: all fibromyalgia patients in a clinical practice, patients participating in the US National Data Bank for Rheumatic Diseases (NDB), and patients invited to participate in the NBD who refused participation. Internal controls included 12, 329 patients with osteoarthritis. Deaths were determined by multiple source communication, and all patients were also screened in the US National Death Index (NDI). Continue reading

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Fibromyalgia: A review of management options

Characterized by widespread musculoskeletal pain, fatigue, and sleep disturbances, fibromyalgia (FM) is a debilitating syndrome affecting approximately 2% of the US population. Disordered central pain processing likely plays a role in the pathogenesis of FM and treatment strategies primarily focus on alleviating pain and addressing associated symptoms and comorbid conditions. Despite evidence suggesting efficacy of various agents that act on the central nervous system and modulate pain perception Continue reading

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Pilates for Fibromyalgia

While the true causes of fibromyalgia are still unknown, it is thought to be a neurologic disorder. Fibromyalgia causes widespread pain throughout the body and exhaustion. Specific treatments are lacking, and conventional therapy typically involves a combination of several medications … Continue reading

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