Thank You, I really need your help.
May 2013 M T W T F S S « Apr 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31
Tag Archives: personal fibro stories
ON March 12th 2012 every post in this blog was deleted! Why, How? No one seems to know. I contacted my hosting company and they said nothing there has changed. Hmm other than their name, billing company, mysql database time up, security of the web sites I host, by that i mean I was unable to get into any sites I have created and maintain for others!! Continue reading
The Fibromyalgia Conference and Pamper Weekend in April on the south coast was another great success inspite of cancellations by the Americans. Described as a ‘coalition’ conference many Group Leaders played a major part in collecting stage payments at group meetings over several months, to enable delegates to come to conference. Without the support of those Leaders, many living on benefits would have been unable to come. Others found their local Rotary Club willing to help fund their visit to the conference. Continue reading
I have battled the effects of fibromyalgia since I was a teenager, and it has been a long search for relief. But I have found the benefits of massage therapy extend to me just as much as to any other person. It has been wonderful to find something so relaxing that keeps pain and inflammation at bay. If it works for me, it could work for you, too. Continue reading
The Cymbalta required a withdrawal, that the makers do not admit to. I had to reduce the amount slowly to avoid the painful headaches and stomach aches. Then there is the brain zaps ! don’t know what else to call them, all of a sudden its like an electric shock in the brain, Continue reading
What I have just described is a very common Fibromyalgia flare up. Yet they only look at you as if you have a screw loose. They do not even check to see if it is Fibromyalgia. They look at your heart and other physical problems that could cause this pain but find nothing. They could perform a simple pressure test to eliminate or confirm Fibromyalgia but you must first navigate a maze of other tests. Continue reading
Here is some of what I have learned as a man from my own
experience with CFIDS/FMS, life, suffering and shame.
Who can know the pain and suffering one must endure?
When misunderstood by those who have no time,
to account for their own infirmity and lack of understanding. Continue reading
Sometime during my mid teen years I began to have great difficulty sleeping. It would take me 1-2 hours or more to fall asleep. Waking up in the morning I felt as if I had not slept at all. I hated mornings. However, I was still able to function normally albeit I was ready to take a nap at any given moment. I finished high school a half-year early because I had already fulfilled the required number of credits for graduation. Continue reading
A fever would change my life forever and how could one imagine that a fever could do that? Over the course of a mid-June weekend I noticed myself getting sick. By Monday morning, I woke –up feeling like my head was going to explode; I could hardly swallow; my throat felt like sand paper; and I was dizzy and disoriented. I asked my mother to check my temperature and it came up a tad below 106 degrees. S Continue reading
In February of this year, I had something like the flu in which I ached and had swollen throat and bad headache and neckache and went to my family doc who said I had all signs of viral meningitis but didn’t confirm with a lumbar puncture and he said since it was viral, it should go away in 3 days and did but left me with vertigo that continued to worsen to the point where I couldn’t do anything. Continue reading
As far as I have been able to remember, this was the beginning of my FMS path. I was subsequently treated for several disorder/symptoms—ulcers, spastic colon, irritable bowel syndrome, arthritis, gout, depression, hypertension, allergies, sinusitis, tinitis and more that I do not recall. (Perhaps that is the ‘brain fog’ of FMS or just the result of all those ineffective meds doctors had previously prescribed.) Continue reading