I just had to share this, no I did not write it but found it on a tweet. Unfortunately I have lost the authors information, leave a comment if you know who it is and i’ll add it. Thanks
1. I save money on magazines. With brain fog, I can’t remember what I just read!
2. I am a cheap date. No alcohol, no dessert and I still feel drunk or hungover.
3. On ‘good day’s’ I feel wonderful. Other people need a much better day to feel that way.
4. I am easy to find…I’m either at the Dr’s office or at home.
5. I never have to make my bed because I’ll probably be right back in it.
6. I have acquired a great lounging/sleeping wardrobe. I rarely get dressed as nobody ever sees me.
7. Disequilibrium saves money on amusement parks. I get the same sensations every time I stand up!
8. I feel smarter than my Doctors…all they say is ‘I don’t know‘
9. With short-term memory impairment I can hide my own Easter eggs and Christmas presents.
I don’t know if I ever mentioned that I live in Massachusetts, USA. I am disabled and on a very limited income but I have been fortunate that with Mitt Romney signing in our comprehensive health care insurance system, I was able to obtain a quality plan for a very modest payment. This plan has paid for all of my past surgeries, tests, doctors, pharmacies during the last 6 years. This included my c2-c5 fusion at a prestigious hospital done by a top surgeon with little wait time. My co-pays have been as high as $5.00 for brand name drugs and doctor visits. A plan as good as any major health provider!
Making the journey from patient to person takes time. The isolation and fear that can overwhelm a person with chronic pain grows over time. And the return to a fuller, more rewarding life also takes time.
It’s a journey with many phases. The ACPA describes these phases as Ten Steps.
The ACPA’s Ten Steps For Moving From Patient To Person.
STEP 1: Accept the Pain
Learn all you can about your physical condition. Understand that there may be no current cure and accept that you will need to deal with the fact of pain in your life.
STEP 2: Get Involved
Take an active role in your own recovery. Follow your doctor’s advice and ask what you can do to move from a passive role into one of partnership in your own health care.
By Karen Lee Richards, Health Guide
People who have fibromyalgia, ME/CFS (chronic fatigue syndrome), chronic pain and any number of other chronic illnesses are in serious danger of being labeled as having a mental disorder.
The 5th edition of the Diagnostic and Statistical Manual of Mental Disorders, commonly known as the DSM-5, is about to go to the printers and is scheduled to be released in May 2013. The DSM is published by the American Psychiatric Association (APA) and contains the diagnostic codes used by doctors for mental disorders. Continue reading
FRIDAY, June 22 (HealthDay News) — About 10 percent of fibromyalgia patients use marijuana to relieve symptoms such as pain, fatigue and insomnia, a new study has found.
Fibromyalgia is a chronic condition that causes widespread pain, fatigue, headaches, sleep disturbances and other symptoms. It affects up to 3 percent of people and is more common among women.
Standard drug treatments for fibromyalgia-related pain provide only modest relief, and some patients self-medicate with marijuana and other traditional therapies, said Dr. Mary-Ann Fitzcharles, a professor of medicine at McGill University and consulting rheumatologist at the Montreal General Hospital of the McGill University Health Centre in Montreal. Continue reading
Got your attention? good, If you have been reading my blog then you know I have been going through a tough time with my daughter almost being killed in an auto accident. After almost 9 weeks in the hospital she came home, we had to keep running for doctors appointments and then more appointments. A little at a time she has gotten better and just a week ago she had taken a shower and forgot to put on her eye patch and later realized that her vision had come back !! Another small miracle, small compared to the other ones she already received.Then my wife took sick and after 2 weeks of misery they finally decided that her gallbladder had to come out. No sweat easy scope operation but painful. Well when they inserted the scope and pumped her up with co2 her heart rate fell and went lower and lower so they stopped and reduced the pressure. Her heart rate came back so they restarted the procedure only this time her heart stopped! Continue reading
ON March 12th 2012 every post in this blog was deleted! Why, How? No one seems to know. I contacted my hosting company and they said nothing there has changed. Hmm other than their name, billing company, mysql database time up, security of the web sites I host, by that i mean I was unable to get into any sites I have created and maintain for others!!
Those problems were fixed but what happened to my little fibro blog? Did I do it? maybe the fog got me and I accidentally highlighted all my posts and hit delete! naw it cant be done, Continue reading
Pain, It is a huge part of our lives. We try not to let it interfere with us, but it does anyway. We all have our own ways for dealing with it and those who love us, for they can be worse than the pain and the long list of other “complaints” that we have. I am fortunate, I have been diagnosed with several “REAL” diseases, and open heart bypass surgery.
By fortunate ‘and I think most of you already know” with having these people now treat me different. If I get tired, they suggest I take a nap or “lay down for a while” that use to be part of Bob’s getting lazy or “just get moving, you’ll be fine”
Friday December 9th the Bridgewater Festival of Lights opened up and I was there to see the lights. It was a great night, on the warm side. The Bridgewater Academy Lions were there for the weekend serving free refreshments and helping Santa and his elves get the pictures taken with the children. It can be a job to keep kids on his lap long enough for a decent picture. My job is keeper of the flame! In other words I put logs on the fire to keep it roaring.
The fire attracts everyone when it gets cold, so I get a lot of company. As the secretary of Starlight Charities I have to be there at the light festival for every weekend and some nights during the week, but with my fibromyalgia it is a hard thing to do. The cold saps my strength and no amount of pain pills can ease the throbbing pain in my muscles and joints but the music and the laughter of the children make it worth the effort. Continue reading
This entry is part of a series, my fibro»
Good morning everyone! I’ve decieded to change the format of this blog. I am going to get selfish and make it about me. The heck with trying to keep content fresh in order to attact those who may click on an add and help support me. Sorry I do need the income, but enough of that.
As many know I am one of the few men with fibro, I believe there are maybe a million more that just don’t want to acknowledge it. I understand why and as I am not a football or sports figure, I cannot influence anyone. I am just your average guy.
In todays episode we find Bob sitting at his keyboard cursing the pain in his hands, How can I type with all this pain? I have already taken my morning 9 different meds plus my get out of bed 10 mg Oxycontin with 1/2 10/325mg percoset. Those 2 I take 20 minutes before trying to get out of bed. Hope we never have another fire Continue reading