Making the journey from patient to person takes time. The isolation and fear that can overwhelm a person with chronic pain grows over time. And the return to a fuller, more rewarding life also takes time.
It’s a journey with many phases. The ACPA describes these phases as Ten Steps.
The ACPA’s Ten Steps For Moving From Patient To Person.
STEP 1: Accept the Pain
Learn all you can about your physical condition. Understand that there may be no current cure and accept that you will need to deal with the fact of pain in your life.
STEP 2: Get Involved
Take an active role in your own recovery. Follow your doctor’s advice and ask what you can do to move from a passive role into one of partnership in your own health care.
By Karen Lee Richards, Health Guide
People who have fibromyalgia, ME/CFS (chronic fatigue syndrome), chronic pain and any number of other chronic illnesses are in serious danger of being labeled as having a mental disorder.
The 5th edition of the Diagnostic and Statistical Manual of Mental Disorders, commonly known as the DSM-5, is about to go to the printers and is scheduled to be released in May 2013. The DSM is published by the American Psychiatric Association (APA) and contains the diagnostic codes used by doctors for mental disorders. Continue reading
Got your attention? good, If you have been reading my blog then you know I have been going through a tough time with my daughter almost being killed in an auto accident. After almost 9 weeks in the hospital she came home, we had to keep running for doctors appointments and then more appointments. A little at a time she has gotten better and just a week ago she had taken a shower and forgot to put on her eye patch and later realized that her vision had come back !! Another small miracle, small compared to the other ones she already received.Then my wife took sick and after 2 weeks of misery they finally decided that her gallbladder had to come out. No sweat easy scope operation but painful. Well when they inserted the scope and pumped her up with co2 her heart rate fell and went lower and lower so they stopped and reduced the pressure. Her heart rate came back so they restarted the procedure only this time her heart stopped! Continue reading
It’s now early February, Patricia just came home to our house, although she could have used an other week or two in a rehab, no one was paying. Maybe it’s just our nervousness and she is ok. I don’t know, she has a halo on her head, a feeding tube hanging out of her stomach and a patch over one eye… Looks fine to me. Continue reading
To my Family and friends who already know about Patrick and Patricia, you can skip this post as there is nothing new in it, I only want to update others who don’t know.
This is way off base from what this blog is about but then again maybe not. I am in pain, so bad I can barely think. Nothing is touching it and I do have narcotics and other “Fibro” Meds. The stress and strain, how can you control it, read on and get the basics of what is happening right now.
Last Wednesday evening at 4:30pm my daughter Patricia was in a horrendous head on accident, she had to be air lifted into Boston where she is now. Trisha is in the Intensive care unit of the Deaconess West Hospital with multiple fractures, ruptured spleen, broken neck c2 broken ribs and other things, she has pneumonia and they cannot operate on her neck in this condition. We had hoped that it would be done today the 20th, perhaps tomorrow, her spleen was removed and anterior arterial surgeries performed to stop hemorrhage behind her eye and going into her brain. She is in tough shape.
Friday December 9th the Bridgewater Festival of Lights opened up and I was there to see the lights. It was a great night, on the warm side. The Bridgewater Academy Lions were there for the weekend serving free refreshments and helping Santa and his elves get the pictures taken with the children. It can be a job to keep kids on his lap long enough for a decent picture. My job is keeper of the flame! In other words I put logs on the fire to keep it roaring.
The fire attracts everyone when it gets cold, so I get a lot of company. As the secretary of Starlight Charities I have to be there at the light festival for every weekend and some nights during the week, but with my fibromyalgia it is a hard thing to do. The cold saps my strength and no amount of pain pills can ease the throbbing pain in my muscles and joints but the music and the laughter of the children make it worth the effort. Continue reading
This entry is part of a series, my fibro»
Good morning everyone! I’ve decieded to change the format of this blog. I am going to get selfish and make it about me. The heck with trying to keep content fresh in order to attact those who may click on an add and help support me. Sorry I do need the income, but enough of that.
As many know I am one of the few men with fibro, I believe there are maybe a million more that just don’t want to acknowledge it. I understand why and as I am not a football or sports figure, I cannot influence anyone. I am just your average guy.
In todays episode we find Bob sitting at his keyboard cursing the pain in his hands, How can I type with all this pain? I have already taken my morning 9 different meds plus my get out of bed 10 mg Oxycontin with 1/2 10/325mg percoset. Those 2 I take 20 minutes before trying to get out of bed. Hope we never have another fire Continue reading
Here are 40 things people shouldn’t say to a fibromyalgia or chronic fatigue patient:
With friends like you, who needs chronic pain?
“It’s all in your head.”
“You don’t look sick.”
“Aren’t you feeling better yet?”
“When are you going to lose the cane, already?”
“Come on, it can’t hurt that bad.” Continue reading
By Jeanne Hambleton ©
The Fibromyalgia Conference and Pamper Weekend in April on the south coast was another great success inspite of cancellations by the Americans. Described as a ‘coalition’ conference many Group Leaders played a major part in collecting stage payments at group meetings over several months, to enable delegates to come to conference. Without the support of those Leaders, many living on benefits would have been unable to come. Others found their local Rotary Club willing to help fund their visit to the conference. So many people pulled together to make it happen and during the ‘fond farewell’ it was clear that they all enjoyed themselves. Continue reading
WASHINGTON, Aug. 21 (UPI) — The chronic pain syndrome fibromyalgia, which most often occurs in women, can also affect men — not only as patients, but as caregivers, U.S. researchers say.
“Although 10 percent to 20 percent of fibromyalgia patients are males, few scientific studies have been done in this population,” Lynne Matallana of the National Fibromyalgia Association says in a statement.
The National Fibromyalgia Association and the American Pain Foundation are joining with the Men’s Health Network in conducting an online survey. Continue reading