Tag Archives: coping with fibromyalgia

10 best things about Fibromyalgia

This Site For Sale, make an offer for complete site or just domain name, send to admin@fibronews.com also have sister site fibronews.net

I just had to share this, no I did not write it but found it on a tweet. Unfortunately I have lost the authors information, leave a comment if you know who it is and i’ll add it. Thanks

 

1. I save money on magazines. With brain fog, I can’t remember what I just read!
2. I am a cheap date. No alcohol, no dessert and I still feel drunk or hungover.
3. On ‘good day’s’ I feel wonderful. Other people need a much better day to feel that way.
4. I am easy to find…I’m either at the Dr’s office or at home.
5. I never have to make my bed because I’ll probably be right back in it.
6. I have acquired a great lounging/sleeping wardrobe. I rarely get dressed as nobody ever sees me.
7. Disequilibrium saves money on amusement parks. I get the same sensations every time I stand up!
8. I feel smarter than my Doctors…all they say is ‘I don’t know‘
9. With short-term memory impairment I can hide my own Easter eggs and Christmas presents.

Obama Care, Just what we all needed, right?

I don’t know if I ever mentioned that I live in Massachusetts, USA. I am disabled and on a very limited income but I have been fortunate that with Mitt Romney signing in our comprehensive health care insurance system, I was able to obtain a quality plan for a very modest payment. This plan has paid for all of my past surgeries, tests, doctors, pharmacies during the last 6 years. This included my c2-c5 fusion at a prestigious hospital done by a top surgeon with little wait time. My co-pays have been as high as $5.00 for brand name drugs and doctor visits. A plan as good as any major health provider!
Continue reading

Alcohol, Fibromyalgia, and Quality of Life

Mar. 15, 2013 — Low and moderate drinkers of alcohol reported lower severity of symptoms of fibromyalgia than teetotallers, finds a study in BioMed Central’s open access journal Arthritis Research & Therapy. Too much alcohol reversed this effect.

The chronic pain of fibromyalgia is thought to affect one in 20 people worldwide but there is no known cause or cure. It often goes hand in hand with fatigue and sleep problems, headaches, depression and irritable bowel and bladder problems. Treatment is based around pain management and lifestyle changes.
Continue reading

“Mommy, I think I’m going to throw up.”

Those may be the eight most dreaded words a child can utter, especially in the midst of a stomach bug outbreak like the one that has gripped the Richmond area for the past two weeks.

IMAG0054

I heard them early this afternoon, my poor little girl standing in the bathroom with fat tears rolling down her flushed cheeks.

I think I mentioned once before that I’m a little manic when my babies get sick. Our pediatrician laughs and says I’ve gotten “much better” than I was when my oldest was a toddler, but I know I still freak out more than your average mom. Continue reading

Family Updates for those who care

It’s now early February, Patricia just came home to our house, although she could have used an other week or two in a rehab, no one was paying. Maybe it’s just our nervousness and she is ok. I don’t know, she has a halo on her head, a feeding tube hanging out of her stomach and a patch over one eye… Looks fine to me. Continue reading

40 Things NOT to say to a Fibromyalgia-Chronic Fatigue Sufferer

Here are 40 things people shouldn’t say to a fibromyalgia or chronic fatigue patient:

With friends like you, who needs chronic pain?

“It’s all in your head.”

“You don’t look sick.”

“Aren’t you feeling better yet?”

“When are you going to lose the cane, already?”

“Come on, it can’t hurt that bad.” Continue reading

Fibromyalgia: A review of management options

Abstract

Characterized by widespread musculoskeletal pain, fatigue, and sleep disturbances, fibromyalgia (FM) is a debilitating syndrome affecting approximately 2% of the US population. Disordered central pain processing likely plays a role in the pathogenesis of FM and treatment strategies primarily focus on alleviating pain and addressing associated symptoms and comorbid conditions. Despite evidence suggesting efficacy of various agents that act on the central nervous system and modulate pain perception (ie, antidepressants, anticonvulsants, and muscle relaxants), no one drug or class of drugs has proven to completely address all symptoms of FM. Evidence-based recommendations utilize an integrated approach that combines nonpharmacologic approaches (specifically patient education, exercise, and cognitive behavioral therapy) and pharmacologic approaches in the management of FM. (Formulary. 2009; 44:362-373.)

The second most common diagnosis after osteoarthritis in patients seen by rheumatologists, fibromyalgia (FM) is a chronic and debilitating central pain disorder.1 FM affects approximately 2% of the US population, with prevalence rates of 3.4% in women and 0.5% in men.2 Characterized by widespread musculoskeletal pain, fatigue, and sleep disturbances, the lack of overt inflammation or joint destruction often associated with numerous other rheumatologic disorders makes the diagnosis and management of FM difficult. Symptoms typically appear between the ages of 20 and 55, but FM can be diagnosed at any age.3 In addition, patients with FM often present with a number of comorbid chronic medical and psychiatric illnesses or pain syndromes.4 Consequences associated with FM include daytime fatigue,

impaired concentration, poor job performance, and decreased patient self-efficacy beliefs.1 Treatment of FM focuses on reducing pain and improving sleep and overall quality of life.

No laboratory or diagnostic tests can definitively confirm FM. A diagnosis is made by a careful review of patient medication, psychosocial and family history, physical examination, laboratory evaluations, and exclusion of other conditions with symptoms of chronic pain, such as chronic fatigue syndrome, rheumatoid arthritis, or Sjogren’s syndrome.4 The American College of Rheumatology (ACR) has compiled the criteria for diagnosing FM.5 However, failure to meet these criteria does not rule out a diagnosis of FM, as the number of tender points may change over time.6,7

The clinical presentation of FM is heterogeneous and in addition to the ACR criteria, other symptoms commonly occur. Musculoskeletal symptoms of FM include widespread pain at multiple sites, stiffness, sensation of hurting all over, and diffuse soft tissue swelling.4 Nonmusculoskeletal symptoms often include difficulty falling or staying asleep, fatigue, paresthesias, and difficulties with concentration and memory. The pain associated with FM can be variable and is often described as a widespread, deep, burning, or gnawing ache.4,7 Physical or emotional stress, nonrestorative sleep, and a decrease in physical activity often worsen symptoms. Fibromyalgia may occur concurrently with hypothyroidism, and other commonly comorbid conditions include anxiety and depressive disorders, insomnia, migraine headache, irritable bowel syndrome, restless leg syndrome, temporomandibular pain syndrome, and Raynaud’s phenomenon.4

While the exact cause of FM remains unknown, genetic influences, physical or psychological trauma or stress, disturbances in the neuroendocrine and autonomic nervous systems, abnormalities in pain perception, and various biochemical changes are all proposed to play a role in its etiology.1,6-9 Many of these findings individually are not specific to FM or sufficient to explain the pain associated with FM. However, it is well accepted that patients with FM experience pain differently than pain-free controls and they do so in the absence of any identifiable underlying disease.1,6

Many of the available pharmacotherapeutic treatment options are based on the proposed pathophysiology of FM and associated comorbid conditions. Recommendations for the management of FM published by the American Pain Society (APS) in 2004 and the European League Against Rheumatism (EULAR) in 2007 employ differing criteria for evidence-based ratings, yet both sets of recommendations support the incorporation of nonpharmacologic and pharmacologic strategies.10,11

What is Savella ?

Savella affects certain chemicals in the brain called neurotransmitters. An abnormality in these chemicals is thought to be related to fibromyalgia. Savella is not used to treat depression but how it works in the body is similar to how some antidepressants work.

Savella is used to treat a chronic pain disorder called fibromyalgia.

Savella may also be used for other purposes not listed in this medication guide.
Important information about Savella

Do not take Savella together with thioridazine (Mellaril), or a monoamine oxidase inhibitor (MAOI) such as isocarboxazid (Marplan), phenelzine (Nardil), rasagiline (Azilect), selegiline (Eldepryl, Emsam), or tranylcypromine (Parnate). You must wait at least 14 days after stopping an MAOI before you can take Savella. After you stop taking Savella, you must wait at least 5 days before you start taking an MAOI.

You may have thoughts about suicide when you first start taking Savella, especially if you are younger than 24 years old. Your doctor will need to check you at regular visits for at least the first 12 weeks of treatment.

Call your doctor at once if you have any new or worsening symptoms such as: mood or behavior changes, anxiety, panic attacks, trouble sleeping, or if you feel impulsive, irritable, agitated, hostile, aggressive, restless, hyperactive (mentally or physically), more depressed, or have thoughts about suicide or hurting yourself. Avoid drinking alcohol while taking Savella. Alcohol may increase the risk of damage to your liver.

Cold or allergy medicine, narcotic pain medicine, sleeping pills, muscle relaxers, and medicine for seizures, depression, or anxiety can add to sleepiness caused by Savella. Tell your doctor if you regularly use any of these other medicines.

Savella can cause side effects that may impair your thinking or reactions. Be careful if you drive or do anything that requires you to be awake and alert.
Before taking Savella

Do not use Savella together with thioridazine (Mellaril), or an MAO inhibitor such as isocarboxazid (Marplan), tranylcypromine (Parnate), phenelzine (Nardil), rasagiline (Azilect), or selegiline (Eldepryl, Emsam). Serious and sometimes fatal reactions can occur when these medicines are taken with Savella. You must wait at least 14 days after stopping an MAO inhibitor before you can take Savella. After you stop taking Savella, you must wait at least 5 days before you start taking an MAOI. You should not use this medication if you are allergic to milnacipran, or if you have untreated or uncontrolled narrow-angle glaucoma.

If you have certain conditions, you may need a dose adjustment or special tests to safely take this medication. Before you take Savella, tell your doctor if you have:

* liver or kidney disease;
*

heart disease, high blood pressure, heart rhythm disorder;
*

seizures or epilepsy;
*

glaucoma;
*

a bleeding or blood clotting disorder such as hemophilia;
*

enlarged prostate, urination problems;
*

bipolar disorder (manic depression);
*

a history of heavy alcohol use;
*

a history of suicidal thoughts or actions; or
*

if you are allergic to aspirin or yellow food dye.

You may have thoughts about suicide while taking Savella, especially if you are younger than 24 years old. Tell your doctor if you have new or worsening depression or suicidal thoughts during the first several weeks of treatment, or whenever your dose is changed.

Your family or other caregivers should also be alert to changes in your mood or symptoms. Your doctor will need to check you at regular visits for at least the first 12 weeks of treatment.

FDA pregnancy category C. It is not known whether Savella is harmful to an unborn baby. Before taking this medication, tell your doctor if you are pregnant or plan to become pregnant during treatment. It is not known whether milnacipran passes into breast milk or if it could harm a nursing baby. Do not use Savella without telling your doctor if you are breast-feeding a baby.

Older adults may be more sensitive to the side effects of this medication.

Do not give Savella to anyone younger than 17 years old without the advice of a doctor.

CFIDS & Fibromyalgia Basics

This entry is part of a series, Campbell self management»

By Bruce Campbell

With long-term illness like CFIDS or fibromyalgia, you have a different role as a patient than you have with acute illnesses. With short-term illnesses, you often can rely on a doctor to provide a solution. Continue reading